The last week has been very interesting. I went back to clinic on tuesday to find out that my platelets had dropped to 3,000. This is dangerously low. For those of you who don't know, platelets are what make your blood clot off. So when you get a cut the platelets help you to stop bleeding. When you have low platelets--- like I do, It makes you much more susceptible to bleeding, bruising, etc. The doctors told us that the dropping numbers could be attributed to a number of things. First, it could be a virus that is killing off the platelets. Second, it could be a platelet antibody that eats the platelets. Third, is GVHD. And dropping platelets could also be a sign of relapse..BUT the doctors assured me that if it were relapse all of my other cells would be dropping off.. which they ARE NOT. Just to make that clear. But when they mentioned that of course I freaked out. But after they reassured me I felt much better.
So they did a number of blood tests on me, testing for viruses. I got to do a lovely nasal wash that feels like they are sucking out your brains. I don't recommend it.
So today (friday) we went back up to clinic to see if I needed more platelets after my last transfusion. My platelets had dropped to 2,000. Not good considering the low end of normal is 150,000. But they came in and said that some test results had come back, and told me that I had Epstein-Barr virus (EBV), HHV6 virus, AND a platelet antibody. So.. We can attribute my diminishing platelets to those three little boogers. But I feel pretty lucky to have viruses rather than the other options.
The good news is is that the treatment for both EBV and the antibodies is the same medicine. It is called Rituxan, and can make you feel sick for a day... but isn't near as bad as chemo. So today at clinic I received a platelet transfusion, and my first of 4 doses of Rituxan. The Rituxan took 4 hours to go in, but they assured me that it would only take two hours from now on. With the combination of the platelets and the medicine, we were at clinic for a total of 8 hours today. It was a very long day.
Sorry I have taken a while to update, hopefully the medicine will start kicking in and my platelet problem will be fixed. I am very grateful that we were able to receive answers today. Thank you all for your prayers, I really appreciate it.