The last two days have probably been the worst (pain wise) since Rachel's diagnosis in June. Due to the throat & mouth sores, it is hard for her to even put her lips around a straw to get a drink. They keep increasing her continuous IV morphine, but the pain never really goes away. The left side of her face is all swollen--even around her eyes. She looks like someone used her as a punching bag! They say that inflammation with the sores is normal.
ON THE BRIGHT SIDE:
Even in the midst of these dire circumstances, Rach continues to try to eat! She has all of the docs and nurses in ICS amazed. "No one eats this far into bone marrow transplant," they say. The pain is usually so horrific that the kids just refuse to eat and get IV nutrition instead. Rach was supplemented with TPN (IV nutrition) a couple of days, but she was eating so well that they pulled her off it 2 days ago.
Also, Rachel's WBC (White blood cells) are starting to gradually come up! This means that she should start feeling lots better and that her mucositis (mouth/throat sores) should start to heal. It also means that engraftment (her new marrow taking over and providing her new immune system) could be just around the corner.
I read these Dr. Seuss quotes on a fellow cancer friend's blog. I think this pretty much sums up Rachel's positive attitude and fighting spirit throughout this battle.
Dr. Seuss Quotes:
"And will you succeed? Yes indeed, yes indeed!
Ninety-eight and three-quarters percent guaranteed."
"I have heard there are troubles of more than one kind.
Some come from ahead and some come from behind.
But I've bought a big bat. I'm all ready you see.
Now my troubles are going to have troubles with me!”
(FYI-Rachel really gives me a hard time about inserting too many exclamation marks when I write anything. I hope you are proud of me, Rach. It really cramped my style, but I tried. ha ha)