Wednesday, November 10, 2010

DAY +6

So we're on day +6 since Rachel's bone marrow transplant! We are learning about low microbial diets, mucositis (intense mouth/throat sores), cyclosporine (auto-immune suppressant to help her body accept the new marrow), lots of other new meds to protect her liver, kidneys, etc.

She is also experiencing a new level of pain that she hasn't had to go through thus far in her treatments! In describing her pain in her throat a couple of days ago, she said, "Mom, it feels like I've swallowed a knife!" Simply swallowing her own saliva brings tears to her eyes. She still has an appetite and would like to eat, but it is very difficult due to the pain. She did get some yogurt down this morning...but it took 1/2 hr.

Luckily they have her on a patient-controlled-analgesic (PCA) unit which gives her continuous morphine. She can push a button every 10 minutes for another dose of morphine. They keep increasing the dose to better manage her pain.

She's also learned to use the suction unit by her bed. It helps clear out all the thick gunk in her mouth/throat that makes it hard to breathe etc.

All of this happening and knowing that she just missed her volleyball club tryouts for this season, have made for a somber week. On the up side, she is still trying to eat, in about a week we might see some hints of her counts starting to come up, and--if all goes as planned--we might able to spend Christmas at home...together!

A friend of ours, Amanda Flamm, has this quote on her daughter's blog. This is our goal these next few weeks. Thanks for all of your prayers, love and support!

"Each morning when I open my eyes I say to myself: I, not events, have the power to make me happy or unhappy today. I can choose which it shall be. Yesterday is dead, tomorrow hasn't arrived yet. I have just one day, today, and I'm going to be happy in it."
-Groucho Marx


  1. Rachel- We love you so much!! We are cheering for you (and your new bone marrow) and we are praying for you! We know you can do it. Hang in there. That goes for the rest of the FMS family too!
    Love ya lots, jody and katie and all our crazy kids

  2. Rachel I wish we could make those nasty mouth sores go away. You'd think they could numb your mouth & throat somehow. Just think - you are on the tail end of this battle. It's all going to get better from here! We love you and continue to pray for you. Stay strong!

  3. We love you Rachel. We will pray for the pain to be eased or for God to grant you His grace to push through it.

    Surely he has borne our griefs.

  4. You don't know me but I learned about your blog through your cousin Stacie Stilson and I am soo glad she let me know about it! I have stage 4 breast cancer and I LOVE to read about others fighting cancer with a positive attitude.. and you are just that!!! Keep fighting, especially now that you have your awesome new bone marrow...yipppeeeeee!!!!
    p.s. sorry there are so many side effects right now... hopefully that will be getting bettter soon.
    Love ya,
    Christa Johnson

  5. We are hoping this day is bringing you some happiness! We are always praying for you!