We've been enjoying our time at home this week and decided we'd better update the blog...since it's been awhile! Rachel has enjoyed the freedom of no "IV Pole" tagging along beside her everywhere she goes. She is still on one IV anti-fungal medicine, but luckily it's only once a day. She's also enjoying the "expanded" cable we have at home. Love that hospital cable, but after watching some of the same movies for 3 months, it's time to move on!!
We had a busy day at the Bone Marrow clinic at Primary's today. They started with a pulmonary function test, a fancy name for seeing how strong her lungs are. They also drew 17 different blood samples...thank goodness for her central line so she didn't have to get poked a billion times! Good news is her ANC (absolute neutrophil count) was 1200 today! Hooray! It's still not much of an immune system, but it's much better than it's been!
Then we went down to RTU for a bone marrow aspiration. Waking up from that wasn't so great this time. The anesthesia leaves a feeling/taste in her throat that literally gags her until she throws up! So her pink bucket became her best friend for the afternoon. She's feeling better tonight though and even ate dinner with us.
I have to share a crazy thing that happened the other night at the BYU women's volleyball game. Rachel was wearing one of her traditional knit hats with the ear flaps. Cosmo, being the playful mascot that he is, came up from behind and pulled off her hat and ran down the aisle with it! Meanwhile, I think Rachel is having a seizure or something as I look over and she's scrunched down in her chair, trying desperately to pull her hood from her sweatshirt over her peach fuzzed head! She was ready to skin a certain cougar alive!! I'm sure he was just trying to have fun and if he ever did figure it out, I'm sure he wanted to crawl in a hole! She can laugh about it now, but you don't want to tango with a teenager who's not quite ready to model her new bald-ish doo! We keep trying to tell her bald is beautiful! But it's easy for us to say...