Well, it's been awhile since Rachel has posted on this blog. I guess that's what happens when a teenager beats leukemia, has a successful bone marrow transplant, and finally gets to have some normalcy back in her life. She's been busy planning assemblies, finishing her Sr. year of high school, applying for scholarships to college, playing volleyball, and chilling with her friends.
But along with normalcy comes little "bumps" in the road. Last week Rach started with flu like symptoms--dull headache, low-grade fever, aches and pains. We figured she was catching the cold we'd been passing around our family. On Thursday we found out she had a virus. They put her back on Acyclovir, a drug that helps you fight off or keep viruses at bay. (Especially bone marrow transplant kids) Anyway, we came up to clinic on Monday a.m. to have them check her out...and we landed in ICS! Luckily, all her labs look good. They're giving her more concentrated doses of Acyclovir via IV and hoping she can go home in a few days. I must say that being admitted again brought back a whole bunch of different emotions. It's not near as traumatic as our first stay here when we were first diagnosed.
Rachel is itching to spring out of here, but comforted to know that she will not be staying her 25+ days that she used to each round of chemo! We will keep you updated on her progress.
--Marie
wow! i had no idea you guys could end up inpatient for viruses this far out! crazy! i hope she is out of there soon. i bet it is a really interesting experience being back after so long.
ReplyDeleteHope she is out tomorrow and feeling better. Love you all
ReplyDeleteIt was sure great to see Rachel with you at Church today! She looked great! Like you said, a small (hopefully) bump in the road!
ReplyDeleteHey Rachel! We are thinking of you and hoping you're doing much better!
ReplyDeleteI am hoping that Rachel is back home and well rested today!!
ReplyDeleteMuch love to you all
We hope Rachel is doing a lot better now. we're praying for her!
ReplyDeleteThe Verdegems
Thank you for your comment. She is doing better, thank you. We miss you guys!
DeleteFrost
I just wanted to say, "thank you" for this great record of Rachel's journey with AML. Our 16-year-old son just started round #2 of treatment and is scheduled to have a BMT in a couple months. He and I have been scouring your blog for comfort and an honest idea of what the future may hold for him as he continues in his journey. He is especially inspired by her post-leukemia return to being a great athlete again. I know Rachel is busy, but if she's interested in reaching out to a fellow LDS AML patient (living in Virginia), I think Spencer would enjoy hearing from someone who's been through it before him. If life's too busy, we understand.
ReplyDeletegoolds@verizon.net
Here's a link to our blog: http://wawasmusings.blogspot.com/search/label/leukemia
Rachel, you are such an inspiration to those who are currently going through the same treatment. We heard about your blog from another parent at the hospital we are in. Her 16 year old son is here with AML too. She told me about your blog. After reading it, it gave me some hope. My daughter is 12 years old and has been battling AML FLT-3 since July 2011. She needs a BMT but didn't have a match for the longest time. Finally have a match but can't seem to get to transplant cause the leukemia keeps coming back faster each time. She is currently on Sorafenib, ARA-C, and Mitezantron and sicker than sick. Hoping to get to transplant the beginning of May.
ReplyDeleteSydney has a caringbridge journal that we keep updated similar to your blog. Take care and God Bless you and your family.
Jen Davies
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