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Sunday, January 9, 2011

Day +66

You've probably noticed that since coming home, we have slowed down on our posts. Please don't hold that against us! We appreciate all of you following Rachel's progress! We will try to post at least once a week to give you an update. I'm sure you understand how nice it has been for all of us to be home...together...under one roof again.

Rachel is on day 66 since her bone marrow transplant on November 4th. Her progress is gradual--but we're moving in the right direction. She is still not eating enough on her own to be off of her IV nutrition. But once in awhile she surprises us and asks for a tuna sandwich or a piece of bacon! Fatigue is still a battle, but she gets stronger every day!

She actually got to attend her first hope kids event yesterday. "HopeKids provides ongoing events & activities and a powerful, unique support community for children with cancer and other life-threatening medical conditions. We surround these remarkable children and their families with the message that hope can be a powerful medicine." Our local chapter is headed up by C.R. and Amy Oldham, two of the most amazing people around! Yesterday's event was a movie up at Jordan's Commons. They reserve the whole theater for "hope kids" and their families once a month. We got to see Disney's "Tangled." It was fun for Rachel to get out of the house for awhile.

We appreciate all of your continued support for Rachel. We hope she feels well enough to start working on her school work soon. We've pretty much taken the 2nd term off for transplant. She's planning on "catching up" in the next few months. Even though she won't get to attend school with her friends, she's planning on completing her junior year working with our district tutor.

Have a great week!

--Marie

6 comments:

  1. I am so glad you posted something. I think about your family everyday! We look forward to getting together when Rachel is stronger. I am so thankful that she is home and getting to go to a hopekids event. I hope you can get rid of that IV nutrition soon!

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  2. I've got your blog open all the time, waiting for updates. If I didn't have a cold I would have come by to visit in the last week. STEELE wearing my orange bracelet, though!! :) Visited your ward on Sunday and missed seeing you there with the others. That will be a great day when you can rejoin your friends at school and church. Love you, Rach!

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  3. Hooray for getting out with Hopekids!! We love C.R. and Amy also. They do amazing things for families. Thanks for updating we do think of you all the time and pray for you all.

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  4. I read and ENJOY every post! I am so glad that you are enjoying your time home together and hope it lasts for a really long time. My boys ask to wear their "Rachel Shirts" (the orange shirts) at least once a week and are really good at remembering you all in their prayers. We love you Rachel and are so grateful for your example of faith and endurance. You are STRONG, STEELESTRONG! Keep it up!

    Love,
    Taun, Shannon & Kids

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  5. I am so glad you updated, we have been thinking about you all. I am sure the last things on your mind is blogging.

    We love HopeKids, they are so wonderful and have been such a wonderful support to our family.

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  6. I am so glad you are all doing well. Miss seeing you, thanks so much for the updates. Please let us know if you need anything!

    Lynne

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